MS: Busting the Myths
March 27, 2024 | Advocacy, Carer, Life with MS, Petition, Survey
In 2020-21 more than 1,600 family carers completed the first State of Caring survey. The Carers Alliance are repeating this survey every two years to understand how family carers are doing: their wellbeing, what help they get, what help they […]
November 9, 2023 | Study
The survey, from PROMS, aims to understand the symptoms experienced by people living with MS and which ones have the greatest impact on their lives. It was developed in collaboration with an expert research team as well as people affected by MS, who played a […]
July 26, 2022 | Life with MS, Progressive, Research
Multiple Sclerosis NZ is currently in the process of providing information to Pharmac regarding the high unmet need of those with Secondary Progressive MS. A new treatment, Siponimod (Mayzent), is currently under review and due to be assessed by PTAC […]
May 18, 2021 | Covid-19, Research
The COVID-19 pandemic has had at least some level of impact on everyone as restrictions have been enforced globally. Restrictions can potentially impact many aspects of life, including finances, social and family relationships, travel, access to healthcare and leisure activities, […]
November 25, 2020 | Research
MS Brain Health are running a survey to capture the value of their work on individuals in developing their approach to MS care – both in terms of personal impact and the wider health and care environment. If you are […]