MS: Busting the Myths
February 25, 2025 | Advocacy, Carer, Carers, Event, Funding, Life with MS, News, Survey
Consultation is underway across the country to help shape future disability funding and service models. This is your opportunity to have your say and we encourage you to do so, now more than ever. Note: This consultation is for people […]
May 15, 2024 | Advocacy, Funding, Life with MS, Media, News, Press Release, Treatments
A celebrated Pharmac decision late last year to fund a vital drug for many Multiple Sclerosis patients has fallen flat – with dozens being turned away for treatment due to severely stretched resources across a number of services. Multiple Sclerosis […]
April 30, 2024 | Advocacy, Funding, Life with MS
On Monday 18 March 2024, Whaikaha – Ministry of Disabled People, announced changes to the purchasing rules for Carer Support, Individualised Funding, Enhanced Individualised Funding, personal budgets, and Choices in Community Living. On 24 April, following significant feedback from the […]
April 29, 2024 | Advocacy, Aids, Funding, Life with MS, My Story
Sativex, or Cannabidiol with tetrahydrocannabinol, is an add-on treatment approved by Medsafe for symptom improvement in patients with moderate to severe spasticity due to multiple sclerosis (MS). It is indicated for people who have not responded adequately to other anti-spasticity […]
March 19, 2024 | Funding, Petition, Uncategorised
Yesterday, 18 March, Whaikaha, Ministry of Disabled People announced immediate changes to disability support funding purchasing rules. These rule changes impact those on: Carers Support (CS) Individualised Funding (IF) Enhanced Individualised Funding (EIF) Choices in Community Living Enabling Good Lives […]