Latest News

Help Shape the Future of Disability Funding

February 25, 2025 | Advocacy, Carer, Carers, Event, Funding, Life with MS, News, Survey

Consultation is underway across the country to help shape future disability funding and service models. This is your opportunity to have your say and we encourage you to do so, now more than ever. Note: This consultation is for people […]


Press Release: Access to Life-Changing MS Drug “snatched away” Due to Staff Shortages

May 15, 2024 | Advocacy, Funding, Life with MS, Media, News, Press Release, Treatments

A celebrated Pharmac decision late last year to fund a vital drug for many Multiple Sclerosis patients has fallen flat – with dozens being turned away for treatment due to severely stretched resources across a number of services. Multiple Sclerosis […]


Clarification on Purchasing Rules from Whaikaha – Ministry of Disabled People

April 30, 2024 | Advocacy, Funding, Life with MS

On Monday 18 March 2024, Whaikaha – Ministry of Disabled People, announced changes to the purchasing rules for Carer Support, Individualised Funding, Enhanced Individualised Funding, personal budgets, and Choices in Community Living. On 24 April, following significant feedback from the […]


Share Your Story – Sativex and Medical Cannabis

April 29, 2024 | Advocacy, Aids, Funding, Life with MS, My Story

Sativex, or Cannabidiol with tetrahydrocannabinol, is an add-on treatment approved by Medsafe for symptom improvement in patients with moderate to severe spasticity due to multiple sclerosis (MS). It is indicated for people who have not responded adequately to other anti-spasticity […]


Immediate changes to Disability Support Funding – Have your say

March 19, 2024 | Funding, Petition, Uncategorised

Yesterday, 18 March, Whaikaha, Ministry of Disabled People announced immediate changes to disability support funding purchasing rules. These rule changes impact those on: Carers Support (CS) Individualised Funding (IF) Enhanced Individualised Funding (EIF) Choices in Community Living Enabling Good Lives […]