May 30, 2024
| Advocacy, Treatments
At MSNZ we would like to understand more about patient experiences with infusion treatments. The first line Disease Modifying Treatment (DMT) options we have been successful in advocating for in NZ are considered some of the best in the world. […]
July 27, 2023
| Treatments
Image: myriam-zilles-unsplash Today, the World Health Organisation (WHO) added three Disease Modifying Treatments (DMTs) for Multiple Sclerosis (MS) onto its Essential Medicines List for the first time. Addressing the global MS movement, Prof Mai Sharawy, Chair of the Board of […]
September 14, 2022
| Advocacy, Progressive, Treatments
Currently, only approximately 1900 of the over 4130 New Zealanders diagnosed with MS are able to access funded Disease Modifying Therapies (DMTs). In particular, those with progressive forms of MS, Secondary (SPMS) and Primary Progressive MS (PPMS), have extremely limited […]
September 14, 2021
| Advocacy, Media, Study, Uncategorised
Media Release: 14 September 2021 (For Immediate Release) A new trans-Tasman study has highlighted alarming health inequities between New Zealand patients living with multiple sclerosis (MS) and their Australian counterparts — adding fuel to the ongoing fight for Pharmac to […]
August 3, 2021
| Education, Treatments, Uncategorised
The MS International Federation’s Atlas of MS showed that off-label disease-modifying therapies are used in at least 89 countries. This highlights the need for transparent evidence-based guidelines to support clinical decision-making, pharmaceutical policies and reimbursement decisions. Because there has been […]