MS: Busting the Myths
May 30, 2024 | Advocacy, Treatments
At MSNZ we would like to understand more about patient experiences with infusion treatments. The first line Disease Modifying Treatment (DMT) options we have been successful in advocating for in NZ are considered some of the best in the world. […]
May 15, 2024 | Advocacy, Funding, Life with MS, Media, News, Press Release, Treatments
A celebrated Pharmac decision late last year to fund a vital drug for many Multiple Sclerosis patients has fallen flat – with dozens being turned away for treatment due to severely stretched resources across a number of services. Multiple Sclerosis […]
April 30, 2024 | Advocacy, Funding, Life with MS
On Monday 18 March 2024, Whaikaha – Ministry of Disabled People, announced changes to the purchasing rules for Carer Support, Individualised Funding, Enhanced Individualised Funding, personal budgets, and Choices in Community Living. On 24 April, following significant feedback from the […]
April 29, 2024 | Advocacy, Aids, Funding, Life with MS, My Story
Sativex, or Cannabidiol with tetrahydrocannabinol, is an add-on treatment approved by Medsafe for symptom improvement in patients with moderate to severe spasticity due to multiple sclerosis (MS). It is indicated for people who have not responded adequately to other anti-spasticity […]
March 27, 2024 | Advocacy, Carer, Life with MS, Petition, Survey
In 2020-21 more than 1,600 family carers completed the first State of Caring survey. The Carers Alliance are repeating this survey every two years to understand how family carers are doing: their wellbeing, what help they get, what help they […]