MS: Busting the Myths
MS affects a wide variety of people in different circumstances. Those providing support often need advice and information to help those they care for living with MS. The below are curated resources that may be of assistance to those looking for information. Anyone providing support to people living with MS is welcome to also contact their Regional MS Society for further information and advice.
Childhood MS A Guide for Parents – MSIF (International Federation)
Kids Get MS Too, A guide for parents with a child or teen with MS – National MS Society (USA)
Mythbuster: I have MS therefore my kids will get MS – video – MSIF (International Federation)
Newly Diagnosed webinar series – MS Auckland
Raising a child with a rare disorder – Rare Disorders New Zealand
Kid’s Guide to MS – Multiple Sclerosis Trust (UK)
Our Dad makes the best boats – Multiple Sclerosis Society (UK)
Our Mum makes the best cakes – Multiple Sclerosis Society (UK)
Has your Mum or Dad got MS? – MS Australia (Australia)
You See, I See: Helping Kids Learn About MS – MS LifeLines®
Understanding Multiple Sclerosis – Written by Doctors, for kids – MS Australia
MS Xplained – A guide for 14 year olds – MS Australia
Keep S’mylein – An activity book to help parents and children learn and talk about MS together – National MS Society (USA)
Someone You Know Has MS – National Multiple Sclerosis Society
Annie & Dan Talk About MS – Part 1 – Introducing MS – MS Society (UK)
Annie & Dan Talk About MS – Part 2 – What Happens in MS? – MS Society (UK)
Annie & Dan Talk About MS – Part 3 – Having a Relapse – MS Society (UK)
My MS Superhero drawing and colouring-in sheets – MSNZ
My MS Superhero Activity Book – A5 – MSNZ
My MS Superhero Activity Book – A4 – MSNZ
Your Education Rights as a Student with Multiple Sclerosis – National Multiple Sclerosis Society (USA)
Someone You Know Has MS – National Multiple Sclerosis Society
When a Parent has MS, a teenagers guide – National Multiple Sclerosis Society (USA)
Kids Get MS Too, A guide for parents with a child or teen with MS – (USA)
Kids get MS Too – Video – MSIF / National MS Society (USA)
Newly Diagnosed webinar series – MS Auckland
Someone You Know Has MS – National Multiple Sclerosis Society
Plaintalk: a booklet about MS for Families – National Multiple Sclerosis Society (USA)
Supporting someone with MS, a guide for family and carers – MS Society (UK)
Family Matters: an information series that offers useful guidelines so that family members and friends can understand the challenges they may face and the strategies that they can adopt to manage better – MS Connect (Australia)
MS Momentum – A bi-monthly podcast from Valerie Wilson of MS Otago.
Whānau & MS webinar – MS Auckland
Fatigue Management webinar – MS Auckland
Newly Diagnosed webinar series – MS Auckland
Relationships & MS webinar – MS Auckland
Bladder-and-Bowel-Booklet-MS UK – MS-UK
Someone You Know Has MS – National Multiple Sclerosis Society
A Guide for Carers – Ministry of Social Development (NZ)
CarersNet – (NZ)
A Guide for Caregivers – National Multiple Sclerosis Society (USA)
MS in your life, a guide for young carers – Multiple Sclerosis Society (UK)
Supporting someone with MS, a guide for family and carers – MS Society (UK)
Guide for MS Caregiver – MSIF adapted from MSSI (India)
Living well with MS as you grow older – MSIF
GP Guide for Relapse Management – (NZ)
Brain health in multiple sclerosis – A nursing resource – (International)
Multiple Sclerosis Relapse Management – (NZ)
Helping you explain MS: a teaching resource for healthcare professionals – Multiple Sclerosis Society – (UK)
Multiple Sclerosis, the quick guide for hospitals, residential homes and nursing homes – Multiple Sclerosis Society (UK)
Physicians Professional Resource Center For Healthcare Professionals – Physicians – National MS Society (USA)
Professional Resource Center For Healthcare Professionals – Nurses – National MS Society (USA)
Professional Resource Center For Healthcare Professionals – Mental Health Professional – National MS Society (USA)
Professional Resource Center For Healthcare Professionals – Rehabilitation Professional – National MS Society (USA)
Multiple Sclerosis in Adults: Management – NICE – Guidelines (UK)
Multiple Sclerosis – NICE – Quality Standards (UK)
Guide for Employers – MS Australia (Australia)
Employing People with MS – MS Australia (Australia)
The Definitive Guide to Inclusion in the Workplace – ThanksBen.com
Diversity in the workplace – Novoresume.com
Employment Law Webinar – Multiple Sclerosis Auckland with Alison Maelzer
Students with MS and the Academic Setting, a Handbook for School Personnel – National Multiple Sclerosis Society (USA)
MS Explained – Multiple Sclerosis Trust
Brain Health for people with MS – MS Brain Health
Your first of 7 steps for Overcoming MS – Overcoming MS
MS Prognosis and Life Expectancy – Multiple Sclerosis News Today
Living well with MS as you grow older – MSIF
Employment Law Webinar – Multiple Sclerosis Auckland with Alison Maelzer
Exercise and Keeping Active with MS – Multiple Sclerosis Auckland with Gilly Davy
Preparing for Your Neurologist Appointment – MS Plus
Self-management and self-management support – Healthify – He Puna Waiora
Maintaining Optimal Bladder Health in MS Webinar – MSNZ with Daniela Aldabe of University of Otago
Wellness toolkit – Healthify – He Puna Waiora
Health and Disability passport – Health & Disability Commissioner
Support Crew – The New Way to Offer Help to Friends and Family – Support Crew
Health Apps – Healthify – He Puna Waiora
