MS: Busting the Myths
Each year, Multiple Sclerosis New Zealand runs a nationwide campaign to increase awareness of multiple sclerosis, a chronic condition affecting approximately 5000 people in Aotearoa New Zealand. We aim to empower people with knowledge, advocate for better access to treatments and assist people to live well with MS.
This year we are launching a new 3-year campaign, focussing on recognising the early symptoms of multiple sclerosis and highlighting ‘Time Matters in MS’.
The campaign, running from 9th to 15th September, seeks to educate people about the possible early symptoms so that more individuals can recognise the signs, take action and get a timely diagnosis.
By making the public aware of the symptoms and the reality of living with multiple sclerosis, MSNZ hopes to develop a more understanding and supportive environment for people affected.
Across the nation, regional societies are conducting street appeals and arranging events to raise the essential funds required to enable them to support individuals with MS as well as their friends, families and whanau in their local communities. Please consider supporting them any way you can.
Studies funded by MSNZ show a 4 ½ year delay from the onset of symptoms and diagnosis. This delay can have a profound effect on long-term brain health outcomes.
A recent study published in the Journal of Neurology found that patients who began treatment within six months of their first symptom had a 30% slower rate of disease progression compared to those who started treatment later. These findings highlight the critical window of opportunity for early intervention.
We’ve heard countless stories of people struggling to be heard, and we want to reduce the 4.5 years it takes, on average, to be diagnosed with MS in New Zealand. We’re focussed on increasing awareness not only among the public, but also the health care practitioners. We’re releasing a series of information pieces over the coming months directed at GPs highlighting the symptoms of MS to encourage the earlier identification and referral for diagnosis.
While there is currently no known cause or cure for MS, thanks to advocacy for access to treatments, research, information and support services, people with MS can live long and fulfilling lives. MS is a manageable and treatable condition and the earlier someone is diagnosed the greater the protection of their long-term brain health, maximising the likelihood of treatment success, reducing or delaying disability and disease progression. With earlier access to diagnosis, treatment and lifestyle changes, people with MS can continue to live their lives, enjoying family life, their careers, doing what they love and achieving their dreams.
Scientific evidence supporting early diagnosis
Studies have shown that treatments for MS are more effective the earlier they are initiated. Delayed access to treatment can lead to disease progression, making it harder to manage symptoms in the long run. Early diagnosis enables patients to start therapies that can slow the progression of the disease, reduce the frequency of relapses, and maintain a higher quality of life.
MS symptoms can be complex and sometimes invisible, making early diagnosis challenging. Common early symptoms include:
As the symptoms of MS can be complex and unseen, we recommend keeping a symptom diary. Note when symptoms occur, how long they last, and any factors that seem to trigger or alleviate them. If you are unsure on how to talk to your GP about possible MS symptoms, taking someone with you to appointments can help you articulate your concerns more clearly.
Our research shows that there is currently a 4.5 year delay on average between the onset of symptoms and diagnosis. This is not acceptable. Our campaign wishes to increase awareness of MS symptoms, encouraging people to seek medical advice if they are concerned about new, prolonged symptoms.
Advances in research and treatments means MS is a manageable and treatable condition, but Time Matters. Early diagnosis could be the key to maintaining a higher quality of life.
Engage with our campaign during Awareness Week by following, liking and sharing our social media posts on Facebook and Instagram and keep an eye out for exciting coverage on the Stuff including this article. Further information on symptoms can be found here.
If you’re not on social media, but still wish to see our campaign graphics, we have you covered, see here.
Further information
MSNZ encourages resiliency, self-management, preventative services and principles of living well with a chronic condition. By providing evidence-based information that supports and encourages people to take control of their diagnosis and condition. Encouraging positive attitudes and life-style modifications, which can have a profound effect on symptom management and maximising opportunities for long-term health and brain health outcomes. We endorse the international MS Brain Health Standards as the benchmark of excellence in MS care in NZ.
About MS Brain Health
Time Matters in MS – Executive Summary
Time Matters in MS – Full Report
Symptom Management Resources
Living Well with MS
What is MS?
Preparing for your neurologist appt – MSNZ
MS Diagnosis Card
MSNZ Facts about MS
Symptoms
Support in Your Communities
MS Regional Societies
Organisations
Resources for all, including children, families, employers and health professionals:
MS affects a wide variety of people in different circumstances. Those providing support often need advice and information to help those they care for living with MS. The below are curated resources that may be of assistance to those looking for information. Anyone providing support to people living with MS is welcome to also contact their Regional MS Society for further information and advice.
Parents, children, teenagers, students, families, carers, health professionals, employers, teachers and general information.
Please consider donating to Multiple Sclerosis New Zealand to advocate for change, and improve the lives of people with MS nationally, or purchase one of our new T-shirts.
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Or donate to your local MS Society, who provide on-going community-based support for people impacted by MS in your region. Follow their link below.
MS Auckland
“This disease is different for everyone but MS Auckland is always there for you regardless of your needs.” Rochelle
M
S Bay of Plenty
“Although I feel the weight of my symptoms, I live a full and active life by taking control of my thoughts and emotions.” Joanne
MS & P Canterbury
“I feel reassured knowing I have access to a range of services. If any unexpected obstacles come my way, I know I have their support.” Annie
M
S Central Districts
“The unknown is big and scary, so it has been vital to have a reliable source of information and advice.” Joshua
MS 
Gisborne
“I’d like people newly diagnosed with MS to know, that there is help and support out there for them within their local MS community, and it’s important to get amongst like-minded people.” Jodi
MS Hawkes Bay
“Receiving a diagnosis is traumatic. Discovering there is a Society dedicated to help, pulls you out of the darkness, to move forward with your life.” Iain
MS 
Marlborough
“Adjusting from an active life to one in a wheelchair has been difficult but MS Marlborough has enabled me to continue to contribute to my community.” David
M
S Nelson
“With Multiple Sclerosis, I experience issues with balance, speech, coordination and being slow at everything! I still like to try new things like tandem skydiving!” Wendy
MS 
Northland
“People say ” You don’t look sick, you look so normal” but what they don’t realise is many of my Multiple Sclerosis symptoms are unseen.” Donna
M
S Otago
“I use my energy to implement strategies to live well with Multiple Sclerosis. Everyone has something they have to manage.” Bronwyn
MS 
Rotorua
“I experienced many scary and invisible symptoms like severe fatigue, loss of sensation in hands and numbness of my torso.” Katy
M
S South Canterbury
“Your support and donations will help MS South Canterbury to keep supporting us, and others like us, who need encouragement and opportunities to fulfil our life-long dreams.” Tracey & Gareth
MS Southland
“Multiple Sclerosis won’t stop me living. I am faced with hurdles, some bigger than others, but that means I have to learn to jump higher.” Julia
M
S Taranaki
“Fatigue, spasticity, limited mobility, and impaired dexterity are some of my Multiple Sclerosis symptoms, but it does not stop my passion for cycling.” Graham
MS Waikato
“My main symptom of Multiple Sclerosis is fatigue. The guilt of not being able to do what I previously could, is very hard.” Shaun
M
S Wanganui
“Using a wheelchair is frustrating. I feel like I can’t do the simple things in life.” Sue
MS Wellington
“I’m usually a cheerful person and I’m determined to navigate life’s challenges with a smile, despite the combined challenges of Multiple Sclerosis, Osteoporosis and Glaucoma.” Bianca-Lucia
M
S West Coast
“My goals may need tweaking to accomplish, but with the right support crew behind me, I can do it.” Rachel
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